News

SCR4Cleft launches website

The Erasmus+ project Empowering Parents of Children with Clefts Speech, Communication and Resilience  (SCR4Cleft) has now launced the website.

http://scr4cleft.org

The IHEM project was just selected as a success story in the Erasmus+ pool.  “Success stories” are finalised projects that have distinguished themselves by their impact, contribution to policy-making, innovative results and/or creative approach, and can be a source of inspiration for others. 

Consortium meets in Vilnius

The project team met on the 24th february 2020 to discuss the pilot tests and final adjustments to training modules. There were valuable comments from the pilots that could be implemented in our materials.

ACT NOW in Sri Lanka

Martin Persson attended a meeting at Faculty of Nursing, University of Colombo.  As part of the meeting, Martin Persson presented several Erasmus + project to 21 healthcare professionals and teachers.  Act Now was presented in how you can take an established psychological method and via European collaborations, generate a functional training program for healthcare professionals.  The information generated a lot of interest and fruitful discussion, including how we could perhaps introduce Act Now in Sri Lanka.     

Martin keynote at the 9th Asian Pacific Cleft-Lip-Palate & Craniofacial Congress

The Asian conference was held in Khon Kaen in the northern part of Thailand, and it was attended by 475 delegates from 25 countries from various disciplines. 
Professor Martin Persson was invited keynote to attended and presented at the conference. Martin gave a lecture that focused on the long term outcomes of cleft on a global perspective, which included introducing several Erasmus + project.  

Our project  Act Now was highlighted as an innovative example of how to provide psychosocial training for healthcare professionals. 

Body positive content in social media can lift body image and mood!

Viewing social media content aimed at challenging mainstream beauty ideals can boost body confidence among young women, a new study in 2019 revealed.

Participants in the experimental research who were shown ‘body positive’ content on Instagram experienced improvements in body satisfaction, body appreciation and positive mood. Those in the same study shown ‘thin ideal’ images and neutral images did not report an equivalent improvement. A new trend on social media, body positivity (or BoPo), aims to challenge narrow societal ideals of female beauty in favour of a broader acceptance and appreciation of all body types, shapes, sizes and colours. Social media accounts promoting body positive content include @bodyposipanda@omgkenzieee and  @beautyredefined.

In the experiment, 195 women aged 18 to 30 years were randomly allocated to view either 20 body positive, thin-ideal, or appearance-neutral Instagram posts. The women were asked to answer questions relating to their body image and mood immediately before and after viewing the posts.

In addition to showing improved body image and positive mood in response to body positive material, the participants also showed favourable attitudes towards body positive accounts, with the majority reporting being willing to follow them in future. Those exposed to ‘thin-ideal’ content experienced decreases in body satisfaction, body appreciation and positive mood.

The researchers said: “To the best of our knowledge, the study is the first to demonstrate that viewing ‘body positive’ content on Instagram may improve positive mood, body satisfaction, and body appreciation.

The research report can be found here:

https://journals.sagepub.com/doi/full/10.1177/1461444819826530

ACT NOW project meeting

The ActNow team met in Tartu, Estonia in mid January 2020 for the walkthrough of pilot trainings in partner countries. The focus was to discuss feedback from trainings, amendments and improvements to the materials.

project website

Body Confident Mums

The kickoff of the newly approved project “Body Confident Mum’s – An Innovative Health Professionals’ Training Program to support maternal mental and physical health” was held in Kristianstad, Sweden on 16th of December 2019.

Dr Zali Yager from Victoria University in Australia is working for Triskelion on this project.

The objectives of this project are to (i) develop, (ii) test (iii) implement and (iv) disseminate the training package for healthcare staff, enabling them to support the mental and physical well being for mothers of children 0-5 years. A further objective is to produce a functional training programme, reflective of the sociocultural diversity across Europe. The project aims to make the training material accessible to a broad range of HCP and other relevant stakeholders and will do so through multi-mode delivery.

Body Confident Mums

Kristianstad University won another project bid where Triskelion is partner. “Body Confident Mum’s – An Innovative Health Professionals’ Training Program to support maternal mental and physical health.

Partners are:

  • Högskolan Kristianstad, Sweden
  • Triskelion, Norway
  • GENIKO NOSOKOMEIO PAPAGEORGIOU, Greece
  • European Cleft Organisation, the Netherlands  
  • TARTU ULIKOOL, Estonia
  • SPITALUL CLINIC DE URGENTA PENTRU COPII “M. S. CURIE”, Romania
  • UNIVERZITET U NISU, Serbia
  • UNIVERSITA TA MALTA, Malta
  • UNIVERSITA DEGLI STUDI DI FERRARA, Italy

14th International Cleft congress

ECCE conference in Sweden

The European COST action CA 16234 held their last conference of 2019 at Kristianstad University and Backaskog slott outside Kristianstad, Sweden.

The main aim was to discuss how we move forward the action according to MOU, the midterm assessment of the action, introduce a new workgroup leader for group 4 (Felicity Vidya Mehendale) and discuss the training school in Malta. 80 delegates were present. There were lectures on patient-centred care, the Japanese perspective, psychological resilience and different local perspectives in cleft care.

SCR4Cleft kickoff in Rijswijk

The kick-off meeting for a ground breaking new Erasmus+ project has just taken place at the project coordinator’s head office (European Cleft Organisation) in Rijswijk on Wednesday 20 November 2019.  17 participants attended from 9 partner countries including the Netherlands, Bulgaria, Serbia, Norway, Romania, Estonia, Ireland, Italy and Malta.  The thee-year project will, for the first time, bring together specialists in speech therapy and psychology to develop an education programme to be delivered by health professionals to parents of children born with clefts.  The course will enable parents to identify signs of impairment and offer practical ways of supporting their child who may be experiencing speech and language difficulties and/or psychological challenges associated with their condition. Speech, appearance and psychological adjustment are inextricably linked.

The team were pleased to welcome Danielle Eerenberg of Erasmus+ Netherlands to the meeting which focused on overall objectives, team planning, administrative procedures and monitoring.  ECO Executive Director, Gareth Davies, said “I am delighted with the enthusiasm we had around the table from international experts in the field.  The partnership is really strong and everyone knows that the real beneficiaries of this project will be the families of children born with clefts” The next meeting will be hosted by the Irish partner in Dublin in May 2020. PARTNERS ARE:

  • European Cleft Organisation, The Netherlands
  • Associatcia Licevi Anomalii, Bulgaria
  • Triskelion, Norway
  • Spitalul Clinic De Urgenta Pentru Copii “M. S. Curie”, Romania
  • Smile House – Fondazione Operation Smile Italia Onlus
  • L-Universita ta’Malta UM
  • University of Niš, Serbia
  • University of Tartu (UT), Estonia
  • Speech at Home, Ireland

News coverage Up&Go Croatia

The Up & Go project have created lots of media interest and during the meeting in Croatia, local TV & Newspapers covered the topic;

u puli predstavljen "Up & Go – A training program"

#VijestiTVIstreDanas je u Puli predstavljen "Up & Go – A training program" u sklopu kojeg se radi na razvoju edukacije namijenjene profesionalcima u ustanovama, udrugama, sportskim klubovima koji rade s osobama s Down sindromom i drugim intelektualnim teškoćama, a s ciljem poboljšanja njihova uključenja u sportske aktivnosti i klubove.

Posted by Tv Istra on Monday, September 23, 2019

Regional express news

Glasistre news

Up&Go project training course in Pula, Croatia

The partnership met in Pula and had a thorough walkthrough of the developed course material in order to get feedback for redesign and finalization. The course intends to teach trainers and volunteers about inclusion of people with down syndrom in physical activity. Local TV station NOVA TV and different newspapers were very interested in the project and was attending.

HI3 training course in Ljubljana

The consortium of the HI3 project met in Ljubljana on the 20th and 21st of September in order to run through a test training of the developed training course. Feedback was collected and the partnership decided how the course should be adapted to local and cultural needs.

Second ACT NOW project second transnational meeting

The second meeting of the EU Erasmus+ funded project “Act Now” was completed at the University of Neapolis in Pafos, Cyprus, on 29 March 2019. The partners from Cyprus, Estonia, Greece, Romania and Slovenia presented the National Analyses and the results of their Surveys. The national surveys were conducted based on a questionnaire developed by.

Martin & Gareth -speakers at ECPCA conference

Dr Martin Persson contributed as a speaker at the 14th annual European Cleft Palate-Craniofacial Association conference in Utrecht, the Netherlands on 12th June 2019. His talk was “Long term outcomes in cleft care – a European approach”.

Gareth Davies also gave a speech on “The European cleft gateway – a directory of cleft resources in Europe”.

The congress brought together experts, practitioners and companies involved in the treatment of cleft lip palate/craniofacial malformations. Professionals attending this congress benefited from high-level scientific presentations, knowledge sharing and networking opportunities, with the overall goal of promoting understanding and treatment of these diseases.