The Cleft Collective is a large-scale multigenerational cohort study of children born with cleft lip and/or palate (CL/P). More than 3300 families have been recruited from all 16 CL/P regional NHS clinical centres since 2013; they have contributed biological samples, completed questionnaires as well as speech and language assessments across various time points. Furthermore, with parents’ consent, the Cleft Collective has accessed medical and educational records through data linkage. This resource has been established to provide data from multiple disciplines with the aim of answering your research questions relating to cleft.
The Cleft Collective website details how you can access the resource. The data access policy, research proposal form and a data dictionary detailing the data which is currently available are all accessible via the website. Please do contact the Cleft Collective directly at email: email@example.com to discuss your research question further as the team is there to support you in any way they can. Where appropriate, they may also be able to discuss the potential of setting up a nested study with you, where new data is collected on a subsample of the cohort.
We encourage collaborators from all disciplines across the world to apply to use the resource.